Pediatric palliative care: Moving forward together

Abstract

Introduction and objective. Pediatric palliative care has undergone substantial development over the past decade, both in its recognition as an essential component of care for children with serious illnesses and in the establishment of specialized services. This review aims to examine its evolution within the scientific and geographical scope of the Pediatric Society of Asturias, Cantabria, and Castile and León, incorporating recent advances in care organization and scientific evidence.

Development. Contributions to pediatric palliative care presented at the Society’s scientific meetings since 2017 are reviewed, together with changes in healthcare models across the three autonomous communities. Findings from regional epidemiological research are discussed, alongside recent studies addressing symptom assessment, advance care planning, and integrated hospital-home care. Emerging models providing intermediate care and family respite are also considered.

Conclusions. Organizational and scientific advances reflect a transition from recognizing pediatric palliative care needs to developing specialized healthcare responses. Important challenges remain regarding geographical equity, professional coordination, continuity of care, and outcome evaluation. Strengthening integrated, family-centered models of care should be a priority for future development.