Keywords
Quality of Life
Palliative Care
Pain
Child
How to Cite
Abstract
Introduction/objective. Pediatric palliative care (PPC) is a comprehensive care model for children and adolescents with life-limiting or life-threatening conditions and their families. Despite regulatory and healthcare advances, significant gaps remain in its implementation, alongside a general lack of awareness among pediatric professionals. This review aims to provide an updated overview of the fundamentals, epidemiology, specificities, and essential clinical and ethical aspects of PPC.
Development. The definition and conceptual framework of PPC, epidemiology, and classification of eligible conditions according to the Association for Children’s Palliative Care (ACT) groups are reviewed. The unique characteristics distinguishing PPC from adult palliative care, the integrated care model from diagnosis onwards, symptom management with particular focus on pain, communication principles, and advance care planning are analyzed. End-of-life care, bereavement support, and professional self-care are also addressed.
Conclusions. PPC is a right for every child with a life-limiting condition. Its early integration improves the quality of life of both the patient and the family. It is essential that every pediatrician understands the basic principles of PPC to ensure adequate care.
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